Monday, July 15, 2024

Rhabdomyolysis or Bust

I am tired. I am chronically exhausted. And Friday night all I wanted to do was come home and go to bed. Alas, I got home and had to walk the dog and then make dinner and then eat dinner. After dinner, I walked the dog (because she is still on edge about fireworks and won't go out if it's even close to sunset) and then I started getting the process of what I thought was going to be going to bed. 

But Dr. BB's left arm was swollen and it was super noticeable and there was no real cause for the swelling. We did a brief phone consult with my FIL, a retired family physician, and he suggested we go to urgent care/ER just to get it looked at. I sighed, knowing that my early bedtime was not happening. Dr. BB drove us over the river to the hospital

(Ours is a rural hospital that is independently owned. I have no idea how it's still in business, but the employees there are the happiest I've ever met in health care.)

and we were giggling the entire time because we thought we were overreacting about a silly thing. Not a silly thing when he skipped triage and was booked into a room right away. The ER doc decided, literally because it was not busy, to run some blood tests. Turns out he has exercise-induced rhabdomyolysis and normal CK levels are between 30-200 and his was close to 12000. 


The thing about rhabdo is that it happens to people who exercise too much or too hard. I've only ever heard of rhabdo in the context of long-distance athletes, including runners and cyclists, and when some Iowa football players did a squat off that landed a bunch of them in the ER. It's also common in folks with a BMI of 35+, either because of obesity or because of musculature. You know who you don't usually see it in? Healthy 45-year-old men who weigh less than I did when I graduated from high school. On Tuesday he did a lifting practice he's done dozens of times before. On Wednesday he did a lifting practice (different body part). On Thursday he did a what he called an easy tennis lesson. On Friday he was in the ER and if we'd been twelve hours later, the doctors were pretty sure he would have been in kidney failure. 

(Several doctors have talked to him about the importance of rest and recovery. I honestly don't think he did anything unusual or out of the ordinary for him - or me, for that matter. We are both befuddled.)

Meanwhile, the ER doc gets him admitted and the hospitalist comes down to the ER to check in with him and as soon as he walks in the door, he starts laughing. He was expecting a college football player and he got my husband. Jokes all around except my husband was NOT laughing because this is a Big Deal.  

Anyway, he's a weird case. His numbers are not coming down as fast as the doctor would like, so he's still in the hospital and we don't know if he'll come home this afternoon or tomorrow. One of the doctors he saw over the weekend even seemed to indicate he could be in the hospital until Wednesday, which would be very, very bad because the hospital is very, very boring for a guy who actually feels fine, but is rather confined in his movements because he is hooked up to a constant IV drip. 

Oh, but somehow this has become about my husband.

ME! I'm so fucking tired. I am not sleeping well. Saturday night there was a terrible storm and my girls were already out of sorts because Dr. BB wasn't here and I ended up sleeping on the couch because someone has to comfort Hannah. I'm doing all the chores and bringing my husband food in the hospital. 

Oh, I guess I should stop complaining. At least I'm allowed to come home. 

So I guess this is a PSA. Exercise is bad, just like I always thought!

What about Zelda?! She needs love, too. And someone to murder.

Have you ever had rhabdo? My husband has never spent a night in the hospital before - have you? How many nights were you in the hospital?

52 comments:

  1. Oh, Engie. I'm sorry that the levels aren't improving as much as everyone wants them to. Please let me know if I can do anything - even though I know I probably cannot. Does it help to know I'm thinking of you? Because I am. There will be a time after this - but I also know how hard it is to see that when you're in the middle of it. Fingers crossed for a better level this am. <3 Hang in there.

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    1. He's home! Yay! Now I just need to catch up on everything that slipped through the cracks while I was gone.

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  2. That is so weird but concerning. Who knows how and why some things happen to us. All the best to you both, and cat and dog too.

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    1. It is a bit of a medical mystery.

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  3. Engie! This is awful! You must be so tired, my goodness, what an ordeal. Also, how scary and strange. I'm hoping his numbers come down and soon, and you can get some rest.

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    1. He came home yesterday and we both slept like the dead last night!

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  4. Oh, Engie! How scary it must have been. I'm glad Dr. BB is getting good care and hope he'll be home soon and you can get some well deserved rest. (I've been in a hospital twice--both my human babies were over a week late, so the docs had to intervene to persuade them out.)

    And, as you know, I'm in the hospital with A at the moment. Do things feel a bit surreal for you? (Does for me.)

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    1. It is insane when someone is in the hospital. You want to be there with them, so you rush around doing the regular chores (walking the dog felt SO WEIRD - why am I doing this everyday thing like it's a normal day when clearly it isn't?) and then there's nothing to do in the hospital. It's somehow both boring and stressful.

      I'm glad they're both home now, though. Let's hope for some boringness from here on out.

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  5. Oh my, how awful for the both of you. I'd never even heard of this condition before.

    I've been in the hospital several times for surgeries, two births, and once for a lethal strep infection. I hate hospitals. And I've been in your shoes many times because of Rick having back and shoulder (and a gall bladder) surgeries. I don't envy you, but I can commiserate. It's truly exhausting doing everything alone AND worrying about your husband being okay. Hang in there. I'm rooting for you, and I'm hoping for the best for Dr. BB.

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    1. I hear things like a "lethal strep infection" and I wonder how any of us are still alive! Sheesh. Glad you made it through that.

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  6. I'm so sorry, Engie. But so thankful the blood tests were done in a timely manner so this freak incident was caught as soon as possible. I'd never even heard of this sort of thing before.

    I hope his levels start coming down quickly and he's able to return home safely to you and the girls. You all must be missing his presence so much. And then I'm sure you'll collapse from the adrenaline and deep fatigue. Wish I could give you a big hug in person and make you a cup of tea this very moment.

    I have been in the hospital three times; both my babies were born via C-section so I was in for days. And then I had day surgery last year.

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    1. We are SO LUCKY that the doctor ran the tests. It's such an unlikely diagnosis for him. I'm thankful for great medical teams and a local hospital, that's for sure.

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  7. Yikes, I hope he has the speediest and most uneventful recovery he can possibly have. Take care of yourself!

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    1. So far the recovery has been smooth! Thanks so much for your kind thoughts.

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  8. ACK!!! I've heard of rhabdo, in the context of ultrarunning. What a crazy thing for your husband to have it. It doesn't sound like he did anything extreme! I feel really bad for him, and of course I feel bad for YOU. What a stressful situation.
    I was in the hospital once, when I went into pre-term labor with my daughter (I ended up on bedrest and everything turned out totally fine, I carried her to term and even had a home birth- weird sequence of events.) I was there for two or three nights, and it was not fun! Hospitals are NOT restful- there's constant activity all night long and you can't sleep well, then you're just lying there all day long bored out of your mind. I hope, for both of your sakes, that BB can come home SOON.
    Oh, and I'm laughing at your PSA...

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    1. Right? You think of elite athletes when you think of rhabdo - not lifting weights in the basement for half an hour! We have so many questions about how it happened and I don't think we're going to any answers.

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  9. I have heard of it but never in this context.... He'll get to be a story those hospitalists tell, so there's that. I am so sorry for you and Dr. BB!! It must be equally scary and random.... but how good that you went and got it checked out when you did, oof. I hope he can fight the IV boredom and gets out ASAP and that you get some rest yourself. I mean, at least you get a really amazing PSA to share out of this because the whole thing is WILD!

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    1. I'm sort of hoping that they write up his case for a medical journal, no lie.

      And I haven't lifted weights since he was admitted because I'm kind of scared now...

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  10. Geesh that's so scary! And random! I'm so glad you went in and he got care before it got worse :(

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    1. Thank goodness for small town hospitals!

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  11. Oh no! That is awful. How very strange for this to happen to him. Close to kidney failure! So frightening for both of you.

    And don't feel you can't complain about your side of it, just because you're not the patient: the situation is happening to you, too. Plus, it's your blog! One of the main reasons to have a blog, to me, is to write things out. Complain, vent, process.

    Off the top of my head, I haven't had to stay in the hospital since the time I fell down the stairwell and broke the radiator with my head, which happened when I was six, so a long time ago. I think I was there a week, but I don't remember the experience at all.

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    1. Ha! I was laughing as I writing this, but you're right. It's MY blog, so I was just venting for a minute before I went back to worrying about him. But I do think it tells a lot about my interiority. LOL.

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  12. Oh geez. I am glad he sounds OK and hope he can come home soon. I have only been in the hospital to give birth, and it is not my favorite place. I hope you all get some excellent sleep soon.

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    1. A hospital is no place for sick people, that's for sure. No one can get sleep.

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  13. ACK! What the ever living hell? I'm so sorry that you and Dr. BB are going through this BULLSHIT. As everyone else, I am sending healing thoughts to your Ted, and hope he feels much better very soon and that this NEVER happens again. I am sending you love and support and energy, as you take care of business at home and take care of him at the hospital. I've only spent the night in the hospital when I had my daughter, which sucked but was fine. Other times I've been there were with my mom when she had her bypass surgery, and it's the most surreal combination of excruciatingly boring and absolutely stressful, and I do not recommend it. Hang in there.

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    1. I just looked this condition up, and wonder if it could be some sort of metabolic disorder. Am I confusing Dr. BB with someone else, or does he have an autoimmune thing? I think I'm confusing him with my friend's husband (also professor, also in Wisconsin) who has gout...

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    2. You are right that Dr. BB has an autoimmune disorder or two. He has celiac (in remission and controlled by a strict diet) and has eosinophilic esophagitis. There does not seem to be a link between rhabdo and celiac, although it's not well studied, to be honest. There does seem to be a relationship between long COVID and rhabdo, although he was never diagnosed with COVID, so that would be weird. I don't know. Seems like a fluke, but we would both be more comfortable with him resuming an active lifestyle if we knew more about how he could avoid it in the future.

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  14. Yikes! I have never heard of this disorder and it does not seem like his activity level should have resulted in something like that. I am so glad you guys went in! Hopefully you get to the bottom of what caused this as it seems like there might be something else going on since he wasn't really pushing the limits this week and yet this happened to him.

    Outside of having kids, I've been in the hospital 2 other times. I was in for around 3 nights as a child when I had a sinus infection that would not resolve. So I needed IV drugs but I found out after the fact that the doctors feared I had a brain tumor because of the level of pain I was experiencing and the weight loss. My poor parents must have been so stressed while we waited for the CT scan to come back! Then I was hospitalized for 2 nights when a pain in my leg that I had been dismissing at round ligament pain when was 34 weeks pregnant w/ Paul (which is a typical source of pain for pregnant women) was actually a massive blood clot.

    Ugh we had those same strong storms, too. Phil was shocked the tornado sirens did not go off. There were 65 mph winds in our neighborhood and we lost power at 1am on sat night. It was just restored about an hour ago thank goodness because I really don't think I could have handled another night of our whole family sleeping in the basement guest room. Although that pales in comparison to what you are dealing with! I hope BB is out of the hospital very soon!!

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    1. I was thinking about how you didn't have electricity for so long!! I would have caved, probably, and gone to stay with Ted in the air-conditioned hospital. We had bad storms Saturday, Sunday, and Monday nights and by the third night I was willing to give the dog away to a good home. I just couldn't deal with her on top of everything else!

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  15. OMG. I'm so sorry to read this! I've never in life heard of this, so it seems so bizarre. I'm SO very thankful that you made the call to your FIL and that you guys heeded his advice of visiting the ER. Also thankful, they took notice and didn't balk the symptoms.

    Well, that's it. No more exercise for me. (Kidding)
    I hope you get some much needed rest; kinda rude of your husband to need all this attention. (again, kidding) Prayers he's home soon.

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    1. I am only sort of joking about never exercising again! It's no use - your body will fail either way!

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  16. Eek I've never heard of this. Poor Dr. BB! I hope that his numbers will come down and that he'll be released soon.

    And I hope that you get rest and love from your girls while you're flying solo <3

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    1. I have heard of rhabdo before, but ONLY in the context of extreme exercise/elite athletes. It's so scary that it just happened to an average guy.

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  17. I hope Dr. BB gets to come home soon! I had never heard of rhabdo, so I googled it and it was a little terrifying. So I hope Dr. BB continues to have a boring time in the hospital.
    I've been in the hospital six or seven times. The first three or four times were for accidents/injuries when I was a child and then 35 years later, three times to birth babies. I actually loved being in the hospital - people bring you food, I could watch unlimited tv, and the nurses were nice to me and it was quiet. I suspect I would not like it as much if I had a serious medical condition, though.

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    1. Yeah, I googled it briefly when it was first being suggested as a solution, but I think I'm going to stay away from google for a while. The "life-threatening" bit is soooo scary.

      Ha ha. People did bring my husband food - me! Even the hospital cannot guarantee that their food is GF. *sigh* If he'd been in there any longer, I might have lost my mind!

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  18. I'm so sorry to hear about this! My Father in law has had Rhabdo a few times (from doing ultramarathons without training enough) but I have never heard of it happening from normal weights/tennis. I'm glad you got to the hospital quickly so it could get treated, I know early detection is also important! Hope Dr. BB gets to come home soon and you get some real rest. Being tired is awful.

    I've been in the hospital for 2 births. I think hospitals are a terrible place to recover from things, although with my twins I was only there for 20 hours but I just wanted to go home the whole time. I think hospitals might be more restful if you don't have to share rooms, but I hope you all are back to normal soon anyways!

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    1. Yes, rhabdo is most common in athletes who are during endurance races! I don't know how it even happened - no one does. He's a medical mystery.

      Hospitals are terrible for rest. People are constantly poking their heads in, checking your vitals, and it's just not a great place to feel rested. He didn't have to share a room, but it was still not quiet.

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  19. ENGIE. Omg. I hope that your husband is home or about to be home. This sounds scary and weird.

    I have spent the night in the hospital once, after giving birth. It was for five nights, though, because my kid was in the NICU. I did once spend the night in the health center at college, for a stupid reason (I was dizzy -- turns out because I had swimmer's ear; am not nor have ever been A Swimmer -- and they discovered I have a BENIGN heart murmur and wanted to keep me overnight for observation SIGH). That's it. I have been very lucky.

    Sending you and Dr. BB all the good thoughts!!!!

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    1. He is home, thanks!

      Huh. Dizzy because of swimmer's ear! Did you get it from showering or something?

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  20. Ohhh no. I hope this is the most uneventful recovery for Dr. BB. take good care of yourself!

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    1. Thanks so much! He's home now and we're trying to resume normal(ish) life.

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  21. Oof! How odd and frightening. I usually here about rhabdo in connection with CrossFit, which sounds scary, but never an idiopathic case which would be even scarier.
    I was in the hospital when I was around six for tonsil removal and it was terrifying. Other than that only when I had my c-section, and it was still terrible - hospitals are just frightening, alienating places. I hope everything resolves quickly and well.

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    1. Yes! CrossFit is another place where you'll hear about rhabdo. They make those "Go Until You Rhabdo" tshirts, which are not funny.

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  22. Well, dang. This really sucks! I've never even heard of this condition and that's just WILD that it happened to him. And it's HARD being the caretaker. The shuffling back and forth between home and the hospital is very tiring. And just being in the hospital can be really tiring, I've found.

    I don't think I've ever stayed overnight in the hospital as a patient! I did stay overnight as a guest when my mom had her thyroid removed.

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    1. I am so thankful that our hospital is local. It was exhausting shuffling back and forth, but I can't imagine how terrible it would have been if I'd have had to travel back and forth for more than five minutes. *sigh*

      You're so lucky you've never had to stay in a hospital! Stay healthy!

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  23. Oh my goodness, what a scary thing! I've never heard of this condition, and it's upsetting to not know the reason why it occurred. I've been in the hospital a couple of times, and I hated it, even though I was treated very well. It's just not a fun place to be. But I think it's even worse when people I love are in the hospital.

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    1. You are right that it probably is harder to be the well person than the sick person because you have to keep everything running smoothly at home, too. It's a lot for everyone!

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  24. Oh my! How scary. And what a completely random series of events. I am so glad you went to the ER! Better safe than sorry. I am so glad he's on the mend. I hope you were able to catch up on some sleep... our lives are busy enough, we don't need "extra adventure" like trips to the ER!

    I've only been in the hospital once (many years ago for iron-deficiency anemia) and stayed for two nights I think.

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    1. I don't understand how people can recover at a hospital - it's impossible to sleep!

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  25. Somehow I missed this post. So sorry that is all happening. I have no idea what your husband is suffering from. My googling and translating didn't really help as it always suggests its a condition with horses... I hope its something that can be fixed...

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    1. Oh, ha! I bet the translation isn't easy. It's a disease (rare) where your muscles break down (muscle death). When this happens, toxic components of your muscle fibers enter your circulation system and kidneys. This can cause kidney damage.

      You may hear rhabdomyolysis referred to as “rhabdo.” Hopefully that helps!

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    2. Thank you for explaining. It doesn't sound fun at all. Well wishes.

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